HelpSaveAvishi.com

HelpSaveAvishi.com is rated 3 out of 5 in the category philanthropy. Read and write reviews about HelpSaveAvishi.com. Avishi (5 yrs old now) has been diagnosed with a rare genetic disorder MPS Type VI - a gradually progressing, debilitating & life-threatening disease. If left untreated, the child's expected life span would be age 20 to 25 years only with deteriorating body condition every year. She needs urgent & specialized medical treatment. Total Treatment Cost: $2,90,000 / Rs. 1.94 crores (INR) Crowdfunding Partner: Milaap.org Crowdfunding Page URL: https://milaap.org/fundraisers/helpsaveavishi Unfortunately she cannot receive treatment for this rare disease in our country - India, as there are no expert medical centers with experience, cutting-edge technology and research for MPS. We need to quickly move her to UMC Utrecht (Netherlands) for required treatment. The cost for same at United States is way more expensive. Your donations will go towards easing the burden of Avishi's treatment, medical care and incidental costs associated with a long stay away from home over the next several months. We need to act very quickly as the count goes in days. During this difficult journey, your prayers and support will make a lot of difference. "We look forward to seeing Avishi grow up normally, run around with the wind in her hair, dance with her parents at her wedding and enjoy everything that life can offer." About MPS Type 6: MPS Type VI is one of the very rare genetic disorders amongst Mucopolysaccharidoses - a group of metabolic disorders caused by the absence or malfunctioning of lysosomal enzymes needed to break down molecules called glycosaminoglycans in human body. MPS VI is caused due to deficiency or absence of enzyme called ARSB (arylsulfatase B) Due to this enzyme deficiency, certain substances cannot be cleared out of body & start getting accumulated The accumulated substances start causing many problems including damage to several parts of body